When I woke up Friday morning, John Mayer's No Such Thing was stuck in my head. No big surprise, really. The first time I heard the song (which was followed closely by the second, and third, and many more) was when I saw the video on VH1 in the hospital just after A was born. I had ample time to watch TV - she was in the hospital for two weeks after she was born, while they tried to figure out what was going on with her health. Friday, we were back on that track yet again.
I've begun to refer to A as our "Mystery Diagnosis" child. Really, it's kind of unfair - there are other children who fit that bill better, but she is ours. Her illnesses have never been severe, just interesting enough to pique the doctors' curiosity and warrant further diagnostic tests. It's to the point now that we've at least started laughing about it - nervous laughter, to be sure, but laughter just the same.
At some point, I should probably write it all down. Today is not that day. The good news is that Friday's appointments with the pediatric nephrologist and pediatric orthopedist only resulted in appointments for follow-ups in about six months or so. Nothing major, just another "huh?" diagnosis to add to her list of "interesting" (not "weird" - she doesn't like being referred to as "weird") conditions that she has. If "huh?" is all she ever gets, that's just fine with us. There are parents out there who are facing far greater challenges with their kids. They have our prayers.
Scrooge With Hives
1 week ago
3 comments:
I think you are remarkable in your attitude about all of this. Praying for (happy, non-concerning and helpful) answers for you all.
Great song!! Sounds frustrating, but better than it being something serious.
not sure what's going on with A, but as a person who walks around with a "huh?" situation, i can relate -- only i suspect its more frustrating when it's a child. hoping eventually, whatever it is is figured out, is not life-threatening, and can be put behind you :-)
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